Public and Patient Involvement and Engagement
Public and Patient Involvement and Engagement (PPI and PPE) is essential to the way in which we share our research with the public and fundamental to achieving true translational research.
The clinical proof-of concept studies have been greatly accelerated by our core ethos of ‘involving patients’ at all stages of our research and engagement programme. A significant part of our work will involve consolidating these activities through the development of Public and Patient Involvement and Engagement (PPI and PPE) strategies and networks across the whole Proteus programme.
Proteus recognises the benefits of early and continued public and patient involvement throughout the research process and are committed to ensuring our research is accessible, communicated effectively and relevant. We have developed an active partnership with members of informed public groups and are intent on adopting a ‘patient-centered’ approach so our research is carried out with patients rather than for patients.
The involvement of patients, carers and members of support groups is vital to ensuring that we:
- Continually improve clinical study design, logistics and recruitment
- Promote and disseminate our research effectively
- Facilitate meaningful dialogue for mutual benefit for all partners
- Address the right research questions and relevant patient needs
Clinical studies must be ‘user friendly’ to meet recruitment targets and help address fundamental gaps in our scientific and medical understanding. As the clinical study activity for the Proteus project ramps up, we have a number of opportunities for patients to participate more actively in the entire research and engagement process.
We are currently actively involving members of informed public groups to advise our project steering group, help identify research priorities, comment on and develop research materials and help share our research ideas and findings widely through innovative public engagement activities.
We have developed strong links with a bronchiectasis support group ‘Breathtakers’ and are now actively working with motivated patients and carers of ICU patients to advise our clinical project steering groups, help identify research priorities, comment on and develop research materials and help share our research ideas and findings widely through innovative public engagement activities. We will also involve the ICU and Chest, Heart and Stroke support groups to extend our PPI and PPE work to further develop our research programme with people who are best placed to represent the interests of patients.
We are all enthusiastic about working alongside people who are best placed to represent the interests of other patients in all aspects and at all stages of our research programme, and look forward to what the next few years will bring.